Saturday 15th September 2018...
I was walking along this beach staring at the beautiful sunset.
Anyone may be thinking of how happy I was to be here at this exact time on this day.
However, these thoughts were easily overshadowed by the 2 minute seizure I had shortly after I started my walk.
My post-seizure fuzzy brain began thinking of the nerve-racking agreement I’d finally made with my Doctors (pictured) the day before to have new technology called The Vagus Nerve Stimulator (The VNS) surgically inserted in 2 months time.
I had absolutely no idea how it would work as, it starts from the base of my chest with a cord leading up to my Vagus Nerve (under the side of your chin) and up towards your brain.
“The goal of VNS Therapy is to prevent seizures before they start, and stop them if they do”. - Cyberonics INC
At the time I thought this was ridiculous and would be miraculous if it actually worked as I’d read that only “...8% of those with VNS Therapy report seizure freedom”. - Cyberonics INC
However, whilst being one of the most difficult decisions, this surgery was probably one of the best I’ve ever made since being diagnosed with post - ‘Anti NMDA Auto-Immune Encephalitis Epilepsy’.
Even though I know I have ‘drug-resistant Epilepsy’, up until the 14th of September 2018 I still thought there was nothing other than medication that could be done to prevent or stop a seizure.
At the time, I also knew how major, new and rare this technology was (especially in Australia) and, how few Epileptic patients there were in Aus with it.
Therefore, it took me approximately 2 years to make the decision for the Surgery to be had on the 2nd November 2018 (post-surgery image).
However, after having it inserted for nearly 12 Months now, the length and frequency of my seizures has thankfully minimised!
It is Foundations like The Epilepsy Foundation who spread positive awareness and, the stories of individuals living with Epilepsy (amongst many other amazing things)!
This can create much needed awareness of new technology (or medications) for others looking for relief.
Without appeals such as the Walk For Epilepsy (run by this Foundation) there wouldn’t be the funds raised for ongoing Support and Research to find and create incredible technology such as The VNS.
If you would like to take part in this years Walk (individually or in my Team) please click ‘Visit Team’ and then ‘Join Team’ on the following page.
Or, if you are looking to Donate, please click ‘Share Now’.
I thank you in advance for your generosity and kindness!
Myself amongst those millions living with this will be forever grateful.